Today I filed for Social Security Disability. Crohn's disease and all the problems I have managing my day to day life because of it has pushed the decision. I met with a lawyer back in December but today was my actual application date. I should be denied in about 3 to 5 months so I can appeal and try again.
This process can actually be done over the phone with an actual person. The woman I spoke to was really nice. But one word kept coming up as I described my condition to her - humiliating. I was surprised that was the word I kept using too, but it just kept coming out of my mouth. I guess I am feeling kind of humiliated lately because of my Crohn's.
But belly hurts a lot lately and I've been going to the bathroom a ton. I have an appointment with Dr. GI next week so hopefully he can help somehow. I took Entocort for one month and I stopped going so much. I had increased stomach pain but the diarrhea at lease slowed down. Now that I'm off of it the diarrhea has started to increase and the belly pain has increased. To me, that means I have inflammation in there some where that the Entocort helped and now needs attention. I'm sure Dr. GI will see it differently though.
What words do you use to describe your disease?