Thursday, December 1, 2016

Sarcasm and Memes





I am nothing if not just a human ball of sarcasm. It's how I deal with things.  I think these memes sum up nicely how I feel when talking to most people, because most people just don't get it. Enjoy!

Wednesday, November 23, 2016

I've been Acupunctured!

Just a little picture of my last acupuncture session.  It was explained to me that acupuncture is like a switch to the body's energy.  Pain is the blocker in the body which impedes the flow of energy.  If your shoulder hurts, like mine did, then you use the switch on the leg to unblock the flow of energy.  Like flipping the switch on the wall to turn the lamp on across the room.  So, to help my shoulder I got punctured in the leg. Please enjoy my beautiful leg and Hello Kitty socks!  And yes, there are 8 needles in my leg. Didn't hurt at all.

Sunday, November 20, 2016

Alternative Medicine Update

First Visit:

The Naturopathic doctor gave me a diet plan to follow and a ton of supplements to take.  She thinks I have an overgrowth of Candida (yeast) in my system.  Probably true.  The all natural 'yeast be gone' pills I am taking make me belch garlic. It's pretty gross.  I'm fairly certain the smell is seeping from my pores now.  The one kind of powdered crap I'm supposed to drink smells like orange cream and the scent is very delightful.  Once mixed with water or juice though, it tastes like shit.  Not even orange cream shit, just shit.  Gritty shit that doesn't ever completely dissolve and leaves chunks in the bottom of the glass so you have to chew when you get to that last swallow.  It's supposed to help my stomach inflammation.  There are also peppermint essential oil capsules which literally make my poop smell minty!  No, seriously.  It isn't as refreshing as it sounds.  It just weird.  But at least I don't need to buy Poo~Pourri now.

Then there is also the other powder mix I'm supposed to take.  I can't do it though. I just can't.  Not only does it smell disgusting and kind of like coconut, which I hate, the taste is abhorrible.  It's not even something I can grit my teeth and get through.  I find the smell revolting and the taste of this powder once mixed is almost as bad as some of the colonoscopy preps I've had.  Yes, it's that bad.  And I want to take it. I want to like it.  I want to do this, but I just can't.

So now I have all these things to take that are somewhat difficult and so far aren't making me feel any better.  I also have this new diet plan that eliminates everything.  No seriously, everything.  I cannot eat anything.  The FODMAP diet was easier and left more options.  This diet is seriously ridiculous.  But I'm trying.  I'm failing, but I'm trying.


Second Visit

She adjusted the impossible diet to add more foods but is still eliminating wheat and dairy.  I honestly think she just added fish. I'm still failing at it.  She said I didn't have to take the gross coconut powder anymore, which is good because I wasn't doing it anyway.  I'm supposed to still take the orange cream powder which is kinda like, ehh okay.  She said I could freeze the garlic pills and that might help with the garlic burps. We'll see.  I'm also supposed to continue the peppermint poop pills. Oh, and there is Melatonin too, I'm taking 5mg every night.  Doesn't seem to be helping me sleep at all but she says it's good for intestinal nonsense so I'm taking it.   

She added some digestive enzymes.  I almost took them.  Until I read the ingredients and realized they contained pancreatic enzymes.  Might I remind you all of what happened the last time I took pancreatic enzymes??  It. Was. Awful.  I refused to take them.  Didn't even open the bottle.  Hubs agreed that we shall never go down that road again.

And then there was the Acupuncture.

I have been having so much tension and pain in my shoulders and neck lately (Fibromyalgia and weather change??), I'm hardly sleeping at all anymore and the massages I was getting only helped for about five minutes so I asked if Dr. Au'Naturale had anything that could help.  So she stuck with me needles.  Nine of them.  In my shin and my arm.  I didn't feel a whole lot better but I did get this...


A huge, disgusting bruise on my arm (shown with a hair tie around it for size reference purposes) from one little tiny acupuncture needle.  Seriously?!  What the hell is wrong with me that I bruise like that?1  I didn't even feel the needle, I swear!

To be fair I did go back for a second session and didn't bruise.





So honestly, I don't know how it's going.  I don't feel much better.  My stomach is still being my stomach, my intestines are still being my intestines, I'm not sleeping worth a shit and my muscles are all tight and painful.  But that's the latest.  That's the update.  I'm still holding out hope. 

A little contest from Healthline

I was notified that my blog has been nominated in Healthline's Annual Best Health Blog Contest!  The contest has a voting period from November 21st through December 12th and every day you can vote for your favorite blog.  THERE ARE CASH PRIZES for the most votes!!!   If you vote for me I'd be super happy and extremely grateful!!  Click HERE and vote for Jenni's Guts because seriously, CASH PRIZES!!!

Thanks everyone and thanks Healthline!

Tuesday, October 4, 2016

Because he loves me

Against everything inside me screaming to give up and be done and pretty much just lay down and succumb to whatever happens to my health, I can't.  I can't give up because my husband won't let me.  He loves me.  He wants to help me in whatever way he can, however he can.  He wants to find a way to make me better.  He won't give up so I won't give up.  I won't give up because he loves me.

We went to a new sort of doctor last week, a naturopathic doctor, an acupuncturist actually.  She does all sorts of "alternative" therapies, not just acupuncturist, and sat down with my husband and I for over an hour discussing everything going on with me.  I meet with her at the end of this week again, after she has a chance to look over all my information and develop an actual plan of care that will take more than three minutes to put together. When I left that appointment I felt something that I haven't felt in so long.  I felt hope.  And hope is a powerful thing.

Let's see what you got, Eastern Medicine.  Please don't disappoint me like Western Medicine has.

Wednesday, August 10, 2016

Giving up

I went to Dr GI last week.  I saw the doctor for approximately 9 minutes.  Long enough for him to question me (again) about why I can't tolerate bile salt acid medication - because he obviously never wrote it down or he thinks I'm lying.  Either way, it's bullshit because after all this time the man should know exactly what it does and why my body doesn't tolerate it.  After the same questions were asked, he ran down the reasons why he doesn't think I have active Crohn's disease causing my problems.  He said, yet again, that he feels my problem 'could' be bile salt acid diarrhea. He even said he thinks it 'could' be some Irritable Bowel Syndrome, but 'definitely' not Inflammatory Bowel Disease because the colonoscopy, EGD, CT Scan, Small Bowel Follow Through and blood work I had done last year didn't show anything.  My doctor looked at me square in the face and said, "go home and do what you can on your own to control your diarrhea with Imodium since you can't tolerate anything else. Your abdominal pain is from chronic diarrhea. There is nothing else to do."  And he walked out.

There. Is. Nothing. Else. To. Do. 

Control your diarrhea On. Your. Own.

Nothing. Else. To. Do.

I can't even write this without tearing up.  I can't even fathom that this visit to the doctor really happened.  The doctor I have trusted for years, the doctor that I chose after having gone through several other doctors, the doctor I trusted, the doctor I needed, that doctor literally gave up and walked out on me. 

So that's it then.  This is the best my health will ever be.  Nothing can be done.  No cause can be found.  No more treatments can be tried.  This is it.  How is someone supposed to handle it when they've been totally given up on?  Fight? Throw a fit?  Go somewhere else?  Why?  Why bother?  Why go through it again?  It's pretty clear that I'm some kind of medical marvel that defies the odds of all current Western medicine and the educational capacity of the field of Gastroenterology on a whole.  So who would be able to help?  I've been doing this dance for over 20 years.  I've been through, at least, 5 doctors that I can remember, not including random doctors that have seen my history or treated me at a hospital.  No one has been able to help or figure it out and now it's all been left up to me to fix myself. Control your diarrhea ON YOUR OWN.

Go somewhere else and fight you might say?  Why fucking bother?  I give up too.

Friday, July 15, 2016

Folks Magazine Features Young Man's Struggle With Crohn's Disease

Everyone should check out this online magazine called FOLKS (http://folks.pillpack.com) that publishes great stories about people who are living with chronic conditions but without reducing them to their conditions.
They are featuring a great story about John Capecelatro's Crohn's Disease which left him unable to eat and bedridden for weeks on end.  But this computer programmer has learned to savor his friends, family and every moment of health.  Read it HERE!

Jenni's Guts gives a big THANKS to the folks at FOLKS for their amazing work!

Thursday, June 23, 2016

Gettin' Ink Done

Check out this link from Healthline featuring fellow IBD'rs who have chosen to get tattoos to show their support, struggle and strength in the face of Crohn's and Colitis.  (My tattoo just happens to be on page 7 of the list!)  I hope you enjoy these as much as I have.  Seeing all this great ink just makes me want to get more!!  IBD INK

If you want your IBD Ink featured on this list, Healthline is looking for new submissions.  All people have to do is send in a clear photo of their tattoo with a short description, with the subject “My Crohn's tattoo,” to nominations@healthline – Then they’ll then feature them on the site! 

Wednesday, June 1, 2016

A Slap In The Face from Entertainment Weekly

After posting about my distaste for social media and explaining that the only social media I'm involved in is Instagram and this blog, I think the Instagram may also have to go.  Simply because there is no reason I would ever want to come across something as disgusting, appalling and just downright rude as what I saw this weekend!

Scrolling through my daily dose of baby animal pictures and motivational sayings I saw this post from CCFA.  This picture, taken from Entertainment Weekly Magazine's special double summer issue, is nothing more than a slap in the face to the whole IBD community. 


Where to begin...

First off World IBD Day isn't on May 23, it's on May 19.  That in and of itself is an insult because if you are going to make fun of something at least get your facts straight.  (Fun Fact: May 23 is actually Lucky Penny Day.  Don't think anyone would be offended if that day was substituted for World Crohn's and Colitis Day in this "joke".)

Second, whose joke is this?  Entertainment Weekly's, Beyonce's or Minnesota's?  Who actually is the one trying to make a joke about World Crohn's and Colitis Day? Which misinformed source is trying to say it's the "Joke of the Week"? I don't read this particular magazine, however I'm thinking the blame falls on Entertainment Weekly.  Minnesota is just a state trying to pay homage to a celebrity for some reason I really don't care about.  Beyonce is just a celebrity who will be put in the news at the whim of the paparazzi for no other reason than the fact that she's famous.  Entertainment Weekly, however, is a magazine that is supposed to have writers and editors and fact checkers and I really just want to scream,  "WHAT THE HELL WERE YOU THINKING?!"

Third, take that?  TAKE THAT?  Really?  This is how Entertainment Weekly chooses to word this?  Why would anyone deliberately try to oust a disease?  Why would that be funny?  How does Beyonce being recognized by the state of Minnesota in any way relate to or have anything to do with Crohn's and Colitis?  It doesn't. It just doesn't.  It almost seems as if this slam was deliberate.  Why?

So many comments flew around on Instagram (and I can only assume Facebook, Twitter and the like - though I did read that Entertainment Weekly shut down the comments section on Facebook but I personally don't know that to be true) and most of them stated two main things.  1.  No one would ever think to make fun of 'popular' diseases like Cancer, Diabetes, or ALS.  2.  Crohn's Disease and Ulcerative Colitis are not a joke.

People know about Cancer - every form of Cancer.  People know about Diabetes.  Celebrities come out of the woodwork to advocate for these conditions and many others.  But Crohn's Disease and Ulcerative Colitis are not well known; to the general public or to Hollywood.  I think maybe Shannen Doherty may (or may not) have Crohn's Disease though she won't publicly acknowledge anything about it.  She was quoted once saying it wasn't "sexy".  Mike McCready of Pearl Jam does have Crohn's Disease and he does a lot of advocacy work to raise awareness of IBD, however if you don't follow this type of music chances are you aren't going to know who he even is.  Those of us in the IBD community don't have a super popular celebrity endorsement for our disease.  We are nameless, faceless warriors who fight for our lives every day behind closed doors - literally.  Those who have feeding tubes, ostomies, surgery after surgery, complications, pain and more.  The endless medical debt.  The endless trips back and forth to doctors and hospitals.  We lose friends, relationships, jobs and even family because of our diseases.   We even lose ourselves.  But we do have a voice.  A small little voice screaming from an Instagram post and a little blog with 136 followers.  That little voice is saying, "Hey! I'm here, Entertainment Weekly, and what you did to make fun of us was wrong!"

I joke about my condition.  I joke about pooping.  I have funny pictures on the side of this blog and laughing is a healthy coping mechanism when dealing with the harsh realities of living with a chronic illness.  However, this joke was done in very poor taste.  It was done in a way that was hurtful and makes it seem like a day about a celebrity who has it all - money, fame, beauty and most importantly her health - is much more important and should be celebrated and acknowledged over a day to build awareness and recognition about Inflammatory Bowel Disease.  God forbid Entertainment Weekly use their powers for good to help people understand what IBD actually is and how it effects people's lives.  That would be informative and tasteful journalism though - obviously way too much to ask from anyone in 'the business'. 

Entertainment Weekly's website says "Smart. Funny. First."  They were none of these things when it came to this. At least Entertainment Weekly did do one thing I can't be pissed about - they spelled Crohn's correctly.



Friday, May 27, 2016

S L E E P

Sleep.  Sleeping.  Slept.  To have slept.  I miss sleeping so much!  I used to sleep a lot.  I used to be able to sleep a lot.  Now I'm lucky if I get more than three consecutive hours of sleep in any give day or night.  The irritating part is there isn't even anything on my mind.  I'm not over thinking things, I'm not planning things, I'm not brainstorming, I'm not having made up arguments in my head, I'm not having racing, word salad thoughts.  I'm not balancing the checkbook or trying to solve problems.   I'm just... awake.  Uncomfortable.  Itchy.  In achy pain that isn't enough to be excruciating but enough to be annoying.  My muscles feel like they need stretched or pulled.  My joints and tiny bones in my wrists and hands ache.  My shoulders kind of feel out of socket or like they need popped.  My calves feel kinda crampy when I try to stretch.  I'm getting enough water I think because I'm constantly in the bathroom peeing all night - which also isn't helping anything.  When I'm not peeing though, I'm all with the diarrhea; but that's nothing new.  I'm just uncomfortable.  Is it my Fibromyalgia?  Possibly Restless Leg/Arm Syndrome that I've never been diagnosed with?  Is it something totally new that I can add to the list of stupid crap that's "wrong" with me that no one will ever be able to affirmatively say what it is and what causes it and actually give me something to stop it?  Is this normal?  Does everyone feel this way?  Am I going insane from lack of sleep?  All these questions are what I think about.  Not any actual problems. And I'm fairly certain I will probably...


(All ya 80's kids gonna get that Freddy reference! HA!)

I'm trying lavender essential oil in a little diffuser.  They say it's calming and can help you sleep.  It's natural.  I'm undecided on if it works.  It hasn't been long enough to tell for sure.  But at least I'm trying.  I just hate not sleeping.  I hate this uneasy feeling in my body.

I've tried all the drugs too and nothing works.  I just end up with headaches the next day that aggravate my current nausea situation.  And they don't even help me sleep.  That's the part that is so stupid.  Why doesn't my body want to sleep?  I hate insomnia.

I apparently posted almost this exact same rant back in July last year.  Weird.